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Renato lives in Italy and has Haemophilia A

Finding support

You have probably spent your time since the diagnosis doing all that you can to support your loved one, becoming the best carer you can be. But have you thought about yourself? Have you stopped to look for support? If not, it is vital to know that you are not alone in this. Aside from the medical help you are receiving from your healthcare team, you can find support in several different ways.

Mohamed lives in Kuwait and has Haemophilia A

Speaking with family and friends

Reaching out to family and friends can make a massive difference to your support structure. The more people that you trust to talk to, the more people you can lean on when you need them. Your family and friends are probably waiting for you to reach out to them and perhaps do not know the best way to talk to you about the diagnosis. Try reaching out to one family member or friend this week and see if it helps. If so, continue to reach out and grow your support network. 

Brian lives in the USA and has factor VIII deficiency

Speak with your healthcare team, they will be able to recommend local or online support groups. The World Federation of Hemophilia global community newsletter can help you to connect with other people living with haemophilia.

Related Pages

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Since the diagnosis, you have probably been doing all you can to support your loved one. However, have you thought about yourself and looked for support?

<b>Changing Haemophilia<sup>®</sup>video library</b>

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We found that sharing knowledge and the experiences of others can provide new information and perspectives. Find a number of videos that portray many stories.