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Practical tips on staying positive from Rosie, mum and carer to a boy with Haemophilia A

My name is Rosie, I'm 34 and live on the Isle of Wight with my husband and our two sons Archie, 7 and Louie who is 3. When Louie was 8 months old he was diagnosed with severe haemophilia A.

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How much do you know about haemophilia B?

Haemophilia B genetics, classification and treatment options

Mental Health Meets Haemophilia

There’s something about approaching the end of the year that makes you reflect on where you are, and what’s in store for the next chapter. Whether that reflection leads you to excitement or feelings anxiety, there’s no better time to focus on your own mental health.

Ever wonder if you can keep exercising? Short answer – yes… But here’s what you need to consider

You do not need to be a top competitor to add exercise to your daily (or even weekly) routine, but for those living with haemophilia being active is an essential part of treatment, and the type of exercise you do must be suited to you.

Changing Haemophilia: Symptoms, types and causes

Learn more about how to manage symptoms, eat well and stay active during this time.

Relationship Matters

When you consider the word ‘relationships’ what does it make you think of? By default, you might find your mind wanderings to the type of romantic love you see between two people, candlelit dinners and butterflies in the stomach.

World Haemophilia Day - moving forward with optimism and resilience

Optimism and resilience in unpredictable times have characterised much of the last year and a half, as the global medical community has been brought together in the fight against COVID-19.

8 great things to do outside this summer

We would all benefit from spending more time outside. That is to say, we’re all bound to be enriched and cheered up by the fresh air, the natural light and the lovely landscape that awaits us just beyond our comfort zones.

Changing Haemophilia: Signs, risks and treatment of internal bleeding

Find out more about the signs and risks of internal bleeding, including helpful guidance and practical advice on what to do.

Mythbusting with Luke Pembroke

Being an advocate in the haemophilia community, I’m always the first to say that no question is a silly question. When haemophilia is always on your agenda, it’s easy to forget just how rare of a condition it is and that most people won’t have heard of it. With this lack of awareness comes misconceptions.

Maintaining mental health while managing pain: A haemophilia story

Featuring first-hand accounts from real patients who have dealt with and overcome depression, anger and anxiety.

COVID-19 – and what it means for people living with haemophilia