Changing Haemophilia^® video library

Our video library is great place to discover more from people living with haemophilia. There you will find a range of different people, all telling unique stories, from Heinz who has lived with haemophilia for over six decades, to Olivia and Harry, mum and son, both thriving despite facing a number of challenges.

William

William’s goal to become a motocross was stalled when he and his brother were diagnosed with haemophilia B. Now, with the proper treatment progress is back on track.

Brigitte

Brigitte, a nutritionist from Germany and her patient Jonah. Brigitte will talk about how healthy eating is helping Haemophilia patients with their joints.

Linda

Linda shares her story of being diagnosed with acquired haemophilia - a rare bleeding disorder - at the age of 45.

Heinz

Heinz tells his story of living his life with Haemophilia and sharing insights of how the Haemophilia care changed in the last 60 years.

Dr. Johnny Mahlangu

Dr Johnny Mahlangu is a world-renowned researcher and haemophilia treater based in South Africa.

Brian

Brian, a FXlll deficiency patient is sharing his personal story and raises awareness for this rare bleeding disorder.

Michael

Michael Frei, living with haemophilia A, has a hopeful outlook for younger generations living with haemophilia.

Harry and Olivia

Diagnosed very early in his life, Harry and his mum Olivia share their experience from a patient perspective as well as from a carer's perspective.

Carlos

Carlos from Colombia lives with Haemophilia A. He is telling us his story how he struggled in school with obesity and depression and how he turned around his life. He is now working for the Haemophilia community in Colombia.

Changing Haemophilia® video library