Welcome to Changing Haemophilia®

Welcome to Changing Haemophilia^®

Changing Haemophilia^® was developed by Novo Nordisk to help address the unmet needs in haemophilia and other rare blood disorders. Together with you and our community partners we are striving for better access to care, diagnosis and multidisciplinary care. Here we aim to provide all people living with rare blood disorders a place that they can come to find support and advice, from us and from others.

Who are we?

Welcome! We are so glad you have decided to visit. Why not find out a little more about who we are and why we have created the Changing Haemophilia^® website.

Understanding blood disorders

There are a number of different rare blood disorders that can affect a range of people, including haemophilia, rare clotting factor deficiencies and inherited platelet disorders. Take a deep dive into the science behind blood disorders.

Life & Haemophilia

Living with haemophilia is about so much more than the physical impact it can have. Haemophilia is a lifelong condition that affects so many aspects of a person's life.

Parents & Carers

If you have found out that your child has haemophilia, you may be dealing with a range of emotions. Take a look at our parents and carers page for practical advice.

Doctor & Patient

Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.

Changing Haemophilia<sup>®</sup> video library

Changing Haemophilia^® video library

We found that sharing knowledge and the experiences of others can provide new information and perspectives. Find a number of videos that portray many stories.

References

Mulder K, Llinás A. Haemophilia. 2004;10 Suppl 4:152-156

Valentino LA. J Thromb Haemost. 2010;8:1895-902

Srivasta A et al, Haemophilia. 2020;26 Suppl 6:1-158

Geraghty S. Orthopedic Complications and Treatment related to Chronic Hemarthrosis. National Hemophilia Foundation. 2012 https://www.hemophilia.org/sites/default/files/document/files/nurses-guide-chapter-9-orthopedic-complications-treatment.pdf Last Accessed January 2021]

Mulder K. Exercises for people with Hemophilia. World Federation of Hemophilia. 2006 [Available from http://www1.wfh.org/publication/files/pdf-1302.pdf Last Accessed January 2021]

Eid MA et al. Egyptian Journal of Medical Human Genetics. 2014;15: 139-147

Negrier C et al. Haemophilia. 2013;19:487-498.

Young G. Hematology Am Soc Hematol Educ Program. 2012;362-368.

Wilding, J et al. Obesity Reviews,2018;19:1569– 1584

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